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Rowanbirch
March 27th, 2006, 06:22 PM
Hi. I am a certified parent coach/autistic paraprofessional who works in the home doing carryover therapies and ABA for preschool aged autistic kids.

I charge 25.00/hr with a min of two hours. *yes, it really does make a difference between an hour and two. With two hours I can set up, talk to the Mom/Dad/Caregiver before and after.

Here is my rant, bear with me.

I am constantly told by other therapists that I charge too little. ( I have a degree in youth ministry everything I learned was learned via experience/workshops and additional classwork, I just think charging 90-175 dollars per hour would be ridiculous at this point).

Today, I just found out that a workshop that I would like to attend with a parent is now 2,500 for three days, not including lodging and food.

I am so frustated. On average, the parents I work with spend around 4,000 dollars a month in therapy, with insurance covering only about 2,000 of that.

To me, I feel like parents of ASD children are being exploited by the people who want to help them. And, let me say I am really starting to get torqued at this so called "therapists". One of my little clients, I went to pick up at his therapy office, and since I have open privleges there, (I can go back anytime and observe his therapy) I went early to observe. What turned my stomach was that my three year old guy who is capable of so much and who needs help with things like getting dressed and oh, let see, throwing a ball and pushing a car..was sitting at a table sucking applesauce through a straw. I asked the OT how long he had been doing that, and she said-all session. Now, I am honest, and I said, "so, let me get this straight, this little man needs to learn how to be a child and do the work of childhood-play" and you are letting him sit there at 140 dollars per 50 minutes sucking applesauce through a straw, and not even teaching him how to use a spoon?"(which he needs to do too) I got some bs about sensory integration, and proceptive skills, and working his mouth...and new tastes..

And I said to the OT-"I am calling you on all this BS. Because you know what-he eats applesauce, his mouth was evaluated by a specalist and doesn't need any work on getting "loosened up, he is moving his tongue just fine and apples and anything to do tasting apples is an old taste to him. Do your job that you overcharging people for."


I am just so frustrated with these so called "autisic specialists" who work for years with one child, overcharge, and still don't get results. I think the whole field of autistic "experts" are just a bunch of money grubbing people who are exploiting parents who are the most vulnerable.

And for the record, I work hard for my 25.00 dollars an hour. In fact I would charge 15.00-20.00 but I also count that extra 10.00 dollars because I write monthly reports and write programs as part of my fee.

Okay rant over.

Thanks for listening.
Robin

Rowanbirch
March 27th, 2006, 06:28 PM
Um, yeah, I am also a very vocal and very strong advocate for my clients.

Just the other day I had to say to a speech therapist who left a group practice to do private work as we were discussing a client she was taking with her-she asked me if I would recommend her . I said to her: for Peter sure, but for Billy, no I can't. I just don't think you are the one who will be most effective with Bily.

I think that is why parents like me, they know I am going to be straight up honest and upfront and that their children's wellbeing will always come first, not the money, not the group, not my therapist friends, but their children and their children's wellbeing. So, I might have been hard the appplesauce OT, but I see that as part of my job.

Yvonne Belisle
March 27th, 2006, 08:21 PM
Sad as it is to say this many people in specialized fields like that start out with good intentions then realize how much they can make while doing very little. Many of them will convince themselves they are helping. It is good to see someone that has not become jaded by it and is still willing to put real effort into the kids they work with. I think you will find you are more sucessful with the kids too because they know when someone actually cares about them more than the money. Even an autistic kid can tell the difference between genuine affection and just being a job.

aislin_ryann
March 28th, 2006, 08:49 AM
I used to be the home health aide for a very special girl. Her name is Michele, she is autistic. I did therapy work with her along with the home health aide side of things. When I worked with her, I saw this problem all the time. She had a doctor/therapist that she was seeing. The entire family would go to the appointments (The mom, dad, 3 siblings and myself) and he spent more time with the siblings than her. The therapy she recieved from him was totally useless. As soon as I started saying things to the company I worked for, saying how I thought it was a waste of money for me to go and try to work with her on things and have no one back me up on it, my hours were cut and eventually I was weeded out. This family spends thousands trying to help her and no one does much of anything. I don't think you should charge more, as long as your expenses are coverd. Kudos for doing what so many people don't feel they have time to do! :hugz:

WitchOfEndor
March 28th, 2006, 07:37 PM
Oh my goddess do you make me so greatful for what my girls recieve. My youngest goes to Burger School for Autism & I will be getting my eldest daughter put in there before Middle School. They have been so wonderful & I highly recommend them to anyone with Autistic children & children with pervasive development delays. 4 years ago, my daughter could'nt speak & now, she talks just like any other child, she reads, she does math & her social skills are like night & day. I'm in Michigan & I only wish there were such schools like Burger in every state. When the kids get older, they get them ready to live on their own if possible, get them ready for collage or get them set up in a trade.
Those like you Rowan , who work with these wonderful special children don't get the credit & appretiation you deserve. If not for you & the people like you, my beautiful, loving little girls would be lost & or ignored. What a huge loss to the world if these wonderful little people were never given the chance to show what treasures they are. I'm lucky, my girls are Aspergers & PDD & I can't begin to think how valued your help is to those who have severe cases. When your child has these issues, you feel so helpless, so frightened & can easily sink into dispair. When someone hands you help & hope, there are not words to describe the feeling of gratitude. When one of these special children know you truly care, I believe the great spirit/goddess listens to them far more closely than the rest of us & blesses you for kindness & caring.

Blessings upon you & all those who truly care.