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Semele
March 4th, 2004, 10:56 AM
Ok, So I think you have all seen the Great Strides fundraiser link by now. If not just follow the link in my sig. You all know that Flar7, one of the administrators of this site and a very dear friend of this family has CF, but there are many, many more. One of my other dear friends fighting the CF battle is Ashley Guthrie who was featured in this article in the Tulsa World this last Sunday. I thought I would include it here for you all to read. She is a very courageuos woman and we are praying daily for her to be able to recieve the lung transplant that can give her a little more time on this earth. Also..for some odd reason the pic wouldn't load up in the context of the article..so it is added at the bottom. *shrug*


Two women still await double LUNG TRANSPLANTs
NELLIE KELLY World Staff Writer
02/29/2004
Tulsa World (Final Home Edition), Page A1 of News
View in Print (PDF) Format (http://www.tulsaworld.com/TWPDFs/2004/Final/a_1_2_29_2004.PDF)


http://www.tulsaworld.com/images/Photonotavail.gif (http://www.tulsaworld.com/archivesearch/Search/ArchiveArticleConfirm.asp?ArticleID=040229_Ne_a1_two#)

From left, Heather Cain Martin, 28, and Ashley Guthrie, 22, sit in Ashley’s room at St. John Medical Center. Both are awaiting double lung transplants. A third young woman died in December while awaiting a transplant.
KELLY KERR / Tulsa World


Six months after three young women awaiting LUNG TRANSPLANTs met, one has died and two struggle with health.



One death, several hospitalizations and stronger medicine have been the fates of three local women who need double LUNG TRANSPLANTs.

Since the Tulsa World wrote about Melissa Stites-Wolfe, Ashley Guthrie and Heather Cain Martin in August, their conditions have not improved.

"It's too much reality," Martin said. "Melissa's gone, and Ashley is in the hospital. And it has only been six months."

Stites-Wolf, 26, died Dec. 3.

Guthrie, 22, has been hospitalized for months at a time.

Martin, 28, although still the healthiest in the group, has felt her heart deteriorate even more.

In August, Stites-Wolfe said that she wasn't sure she'd live long enough to receive a second double LUNG TRANSPLANT. Her first transplant was rejected and she hoped to be one of the first patients to receive two transplants so that doctors could study her progress.

After the three women met for a newspaper photo at Stites-Wolfe's home, Guthrie and Stites-Wolfe became friends. The two wrote each other e-mails even when Stites-Wolfe had moved to St. Louis to be ready for new lungs when they arrived.

Although she told Guthrie that she was getting sicker, she always remained upbeat, Guthrie said.

"I'm so glad I got to know her because she told me that even though she only had three years, they were the best of her life," Guthrie said. "So it gave me hope."

Because the two were born with cystic fibrosis, a chronic condition that scars the lungs, they each knew how the other felt.

"It's sad, but I've had so many friends that have passed away," Guthrie said. "I don't want to say I'm used to it, but I guess it's part of life."

The Stites family flew in a medical jet from intensive care at St. Francis Hospital to intensive care at Barnes Jewish Hospital in St. Louis, said Melissa's mother, Lynda Stites. Eventually, doctors told her that she was no longer a candidate for transplant because she was too sick.

Her mother encouraged the family to go back home, she said, so they headed back to Tulsa in a motor home, with Melissa lying on a bed in the back. After about a week at her parents' house, she died.

During trips to St. Louis, Melissa had discussed with her mother the details of her funeral. She requested lilies -- the flower of her birth month and also flowers known for being beautiful, yet having a short life.

She had dictated letters to her husband, Danny Wolfe, for each of her family members, and she asked her mother to write her letter to Danny, all to be read at the funeral, Stites said.

Last Monday was the fourth anniversary of Melissa's transplant, her mother said, and she cried all day. But she enjoys talking about her daughter to keep her memory alive, she said.

"One of her concerns was that she'd no longer be able to make a difference," Stites said. "Anytime I can help her life change others, I want to do it."

Martin found out about Stites-Wolfe's death several weeks later. Her father and husband knew but decided not to upset her. One day while she and her husband were driving, she said she wondered how Melissa was doing.

"He got really quiet," Martin said.

That's when she found out that her friend had died.

As for her own health, Martin is still well enough to work as a social worker for the Department of Human Services. She and her husband have bought and are remodeling a house, and they have a new puppy.

But she tires easily and is preparing to go to St. Louis to begin continuous therapy for her heart. Soon, she will wear a pump that delivers medicine through a catheter into her side. The medicine, called Remodulin, will help her heart so that she doesn't lose her breath so easily.

Martin's condition, called pulmonary hypertension, or high blood pressure in the lungs, is destroying her heart, but when she receives new lungs, her heart will improve, Martin said.

She has been listed for a transplant since October, but her doctors aren't sure she'll be sick enough for a transplant when lungs become available.

"While I appear to be doing very well, my heart is poor, and that could change any day," she said.

Guthrie is trying to stay healthy enough to receive a transplant within the next six months. She was listed for a transplant 15 months ago, and an average wait is about two years, she said.

She was in the hospital from October to December at St. John Medical Center because of low lung function and pneumonia.

Since Jan. 22, she has been at St. John for sinus surgery and to recover from a respiratory infection called pseudomonas, which especially affects the lungs of cystic fibrosis patients.

At the hospital, she receives breathing treatments, oral medicine and IV medication.

Because of her recent hospitalizations, Guthrie took off college for the fall and spring semesters, she said.

In mid-March, she is scheduled to go for a second transplant evaluation in St. Louis and to discuss with doctors when she should move there to wait for new lungs.

Six months ago, Guthrie left her oxygen tube behind for the newspaper photo. Back then, she would hide it if she saw someone who didn't know how sick she was because the tube in her nose embarrassed her.

Now, with her lung capacity hovering around 27 percent, she's on oxygen all the time, and she sleeps wearing a mask that blows high-pressure air into her nose. The pressure keeps the airway open so that she doesn't stop breathing at night.

"I take medicine around the clock," Guthrie said. "I'm on oxygen all the time now. I can't go without it at all."

Although the two surviving women are examples of the need for organ donation, the number of donors remains low.

Oklahoma has 22 candidates for LUNG TRANSPLANTs -- up four from six months ago -- and 549 people waiting for all types of organs. The two local women are not included in the numbers because they plan to have transplants out of state.

Nationally, 3,876 people are candidates for LUNG TRANSPLANTs. In August, more than 82,500 people in the United States were waiting for an organ. Now that number has climbed to 83,295.

But the number of donors in Oklahoma last year was 123 -- 38 living donors and 85 deceased. It's an improvement over 2002, but still not enough to meet the needs of people dying of organ failure.

Since 1988, only 86 people have donated their lungs in Oklahoma.

Those statistics scare Guthrie and Cain because their lives depend on the generosity of those who die and the families who allow their organs to be donated.

"We're your sister," Martin said. "We're your daughter. You can't imagine what this does to a family."

One of Stites-Wolfe's wishes was to be an organ donor, and more than 20 people benefited from her donations. Other patients received her heart valves, ligaments and skin, her mother said.

Guthrie keeps a newspaper advertisement featuring Stites-Wolfe's story of being both a recipient and a donor. It is folded inside the cover of a notebook next to her hospital bed, and it reminds of her own fragile health.

"I tell everyone, 'Donate, donate, donate,' " Guthrie said. " 'Did you check the box?' "

Nellie Kelly 581-8475
nellie.kelly@tulsaworld.com (nellie.kelly@tulsaworld.com)

Semele
March 4th, 2004, 11:01 AM
Also thought I would throw in a couple of pictures of Ashley making blankets at the nurses desk. She is making these to sale to raise money for the CF walk and later for her transplant fund too!

mol
March 4th, 2004, 11:06 AM
A big woot for Ashley!

Semele
March 15th, 2004, 05:16 PM
I wanted to move this thread here and ask for some prayers for Ashley. She has had an especially rough week-end. She was supposed to be already in St. Louis for her check up related to the transplant but has had some set backs. They pushed the appointment back a couple of weeks and she needs a lot of energy and prayers to be able to make it to that appointment. She has been in and out of the ICU this week-end.

She had to have an emergency cardiac drug administered to correct an arryhthmia, but hopefully that will stay under control. Any and all prayers are greatly appreciated by Ashley and her family. Thanks in advance.

Gebo
March 23rd, 2004, 02:44 PM
energy sent

Pesha
March 24th, 2004, 12:15 PM
I can remeber my peadiatric rotation and having to attend many young children who had CF. As an empath I would flow energies into them as they struggled to breath. Many were lost and some were blessed to live on in what are difficult circumstances indeed. I have met many others who lived on into adult hood and were prospering inspite of the CF. Sadly I have not the means to contribute to a good cause such as this as my income is so tiny. But I can and will send blessings and healing energies to all on the above posted list. Special blessings always go out to Flar and to Freyja.

BB
DS.

Nighthawk
March 24th, 2004, 12:18 PM
I am glad there are people watching this....I have lost two friends to CF... It is so sad

Semele
April 11th, 2004, 08:33 PM
Well, a quick update on Ashley. She is still in the hospital. She has been back in the ICU but is once again back on the regular floor with the nurses who know and love her like family! She is doing fair and trying very hard to keep her spirits high. She doesn't have energy to do much of anything but she had plans to go to church today for Easter Sunday with her doctor. We helped her wash and curl her hair last night in preperations for her big day today. Her grandmother bought her a gorgeous new Easter dress to wear and I am sure she was the most beautiful, shining person in the building. I hope she had a great day!

She is still hoping to make it to St. Louis for the appointment regarding the lung transplant. Please keep her in your thoughts and prayers. Thank you all!

Semele
April 26th, 2004, 11:26 AM
Well, Ashley is supposed to go home later today. She could use lots of energy and strength. She went home briefly last Thursday and had to return via ambulance on Saturday. As you can imagine she is very nervous and worried. She has her own brand new apartment that she has only spent a couple of nights in. Lets send her energy to enjoy it a little more this time!

I worry about her being out on her own with no nurse or Respiratory therapist to come running when she needs them, but I know it is important to her. Last night we were at the desk charting and we heard a loud noise and Ashley's pulse ox alarmed. When I got to her room her Bi-pap machine was going off because the tube had disconnected itself. She had the mask on but wasn't getting the air. She was completely out and her O2 sat was 71..(92-100% is the norm). Send lots of energy to keep the tubing connected at home.

Thanks guys and I will keep you updated.

Nighthawk
April 26th, 2004, 11:28 AM
Oh man.... sending energy... sad to hear this.

soilsigh aingeal
April 26th, 2004, 06:53 PM
sending healing energy!

Semele
July 19th, 2004, 08:22 AM
I have the best news! Ashley recieved her pager and got her name updated to the top of the list for new lungs..got the pager on Wednesday in fact...and they called us last night at work and told us to get her ready to go to OKC! Lungs availiable and to be transplanted today at noon.

Myself and a good friend and coworker are heading there in a while. Please send all the energy you can to Ashley and her family. I will update as soon as I know! Thanks!

WandererInGray
July 19th, 2004, 08:40 AM
Oh yay! *crosses fingers and sends energy* That's fantasic news, here's to a smooth surgery, good recovery, and a healthy transplant.

Bainidhe Dub
July 19th, 2004, 08:59 AM
Wonderful! She'll be in my thoughts *hugs*

mol
July 19th, 2004, 09:34 AM
Woooohooo! She has my support! You know it. :)

Earthy
July 19th, 2004, 09:50 AM
That's wonderful,she'll be in my thoughts.:)

Hope
July 19th, 2004, 11:44 AM
most excellent!!

love
hope

DragonsChest
July 19th, 2004, 12:30 PM
What a blessing! Thank you for keeping us up to date. Energies, hope, and love sent her way. And to those who are fighting for her, as well.

Semele
July 20th, 2004, 08:58 AM
She made it through and is doing well! They took her into surgery around 3:30 yesterday and the surgeon came to talk with us right at 8:30. It was originally planned for noon, but the lungs didn't arrive until a bit later. The donor family wanted a little more time, understandably. Please send that family some love and energy...their gift is unique and wonderful but the pain, I can't even imagine.

I feel so privilaged to have been there and there were so many times I was thankful that I swallowed the anxiety and went, like when her Mom would look at Tammy and myself every time the docs or nurses told her something. For instance, the first update was that the old lungs were almost out and the new ones should be ready to go in an hour. Her mom looked immidiately to us and asked in horror if she was just laying there with no lungs. We explained as gently as possible the concept of the heart and lung bypass machine. If not for us, they would have just not ever understood it because they were too nervous to ask the nurse calling and at 8:30 when he came and said she was now off the Bypass and the lungs were functioning perfectly on the vent...they knew what that meant and they could just exhale. I am pretty sure the surgeon appreciated the easy explanation and quick exit he made as a result. He deserved it after all!

A quick call to the nurses desk this morning got me a very sweet, but very firm..."she is doing fine." That is good enough for me. Thanks again to all of you who sent energy and prayers, and especially to the special guy who helped me calm my nerves yesterday..you know who you are...I love you!

nomadicdragon
July 20th, 2004, 09:05 AM
She made it through and is doing well! They took her into surgery around 3:30 yesterday and the surgeon came to talk with us right at 8:30. It was originally planned for noon, but the lungs didn't arrive until a bit later. The donor family wanted a little more time, understandably. Please send that family some love and energy...their gift is unique and wonderful but the pain, I can't even imagine.

I feel so privilaged to have been there and there were so many times I was thankful that I swallowed the anxiety and went, like when her Mom would look at Tammy and myself every time the docs or nurses told her something. For instance, the first update was that the old lungs were almost out and the new ones should be ready to go in an hour. Her mom looked immidiately to us and asked in horror if she was just laying there with no lungs. We explained as gently as possible the concept of the heart and lung bypass machine. If not for us, they would have just not ever understood it because they were too nervous to ask the nurse calling and at 8:30 when he came and said she was now off the Bypass and the lungs were functioning perfectly on the vent...they knew what that meant and they could just exhale. I am pretty sure the surgeon appreciated the easy explanation and quick exit he made as a result. He deserved it after all!

A quick call to the nurses desk this morning got me a very sweet, but very firm..."she is doing fine." That is good enough for me. Thanks again to all of you who sent energy and prayers, and especially to the special guy who helped me calm my nerves yesterday..you know who you are...I love you!


that's awesome. :hugz:

Bainidhe Dub
July 20th, 2004, 09:41 AM
:hugz: wonderful Sem! Ashley's in my thoughts and you guys are too for being such great friends to her :)

Hope
July 20th, 2004, 11:58 AM
blinks tears

oh semele that is lovely news :)


((hugs))


love
hope

Gebo
July 20th, 2004, 12:54 PM
I work with a friend who also has CF. She told me that Ashley was taken off the ventilator this morning and was doing fine. That was around 9am. I do not know if anything has changed. Please keep both Ashley/family and the donor's family in your thoughts and prayers.

Semele
July 20th, 2004, 02:38 PM
http://www.tulsaworld.com/images/2004/040720_A9_Longw17422_A9Guthrie20.jpg (http://www.tulsaworld.com/NewsStory.asp?ID=040720_Ne_A9_Longw17422#)

Ashley Guthrie

She was born with cystic fibrosis, which damages the lungs.

Long wait ends as woman gets new lungs
By NELLIE KELLY World Staff Writer
7/20/2004

Eleven months ago, the Haskell woman told the Tulsa World she wasn't sure that she'd live a year.

Ashley Guthrie's answering machine has an encouraging message: "Ashley has gone for her lung transplant in Oklahoma City."



At 7 p.m. Monday, her family heard even better news. A nurse from the operating room at Integris Baptist Medical Center called the waiting room to tell the Haskell woman's family that both of her lungs had been transplanted and that she was off the heart-lung bypass machine that had kept her alive through the surgery.

"We've been waiting for this for 23 years," said her aunt, Linda Westmoreland.

Eleven months ago, when the Tulsa World wrote about Guthrie and two other women waiting for lungs, she wasn't sure that she'd live another year.

One of the women has since died, Guthrie became sicker, and the third has required stronger medication.

Guthrie, http://adserver.tulsaworld.com/DA/182/pixel.gif23, has been at St. John Medical Center for months at a time this past year for breathing treatments and intravenous medications to fight a lung infection. She needed to stay healthy enough to be eligible for a transplant.

She received a call about 3 a.m. Monday that lungs were available. She left St. John by ambulance and arrived in Oklahoma City at 5:45 a.m.

She had been at St. John for a procedure that would strengthen her heart for the operation, but when the lungs became available, doctors said the heart work could wait.

Two St. John nurses, Tammy Peterson and Brenda Tate, drove to Oklahoma City to be with Guthrie when they finished their shift. They waited along with 19 family members during the double-lung transplant.

Phil Van Stavern of LifeShare Donor Transplant Services of Oklahoma said a plane left for Louisiana about 9 a.m. Monday to pick up the donor lungs.

The plane returned to Oklahoma later than scheduled -- about 3 p.m. Meanwhile, Guthrie was being prepped for surgery, which began as soon as the organs arrived, Westmoreland said.

Guthrie was put on the waiting list for new lungs in November 2002. Recently, she was added to the Oklahoma waiting list instead of the list at Barnes Jewish Hospital in St. Louis.

Twenty-five people in Oklahoma are waiting for lung transplants, according to data from the Organ Procurement and Transplantation Network.

The surgeon told the family that the operation would take about six hours, but it ended ahead of schedule, Westmoreland said.

"It's going much quicker and better than anyone expected," she said.

Guthrie was born with cystic fibrosis, which causes thick mucus and scarring in the lungs.

Depending on her recovery time, Guthrie will stay in the Oklahoma City area for three weeks to three months to be near her doctors.

The family is still raising money for the transplant and anti-rejection medications. They are working through the the Children's Organ Transplant Association.

Donations payable to "COTA for Ashley G." can be sent to 2501 COTA Drive, Bloomington, IN 47403. Prospective donors can call Guthrie's campaign manager at 521-1193.

mol
July 20th, 2004, 02:49 PM
Too cool!!!!

WandererInGray
July 20th, 2004, 06:47 PM
Yay! :hugz: Quick healing and all the energy I can spare being sent.

Flar's Freyja
July 20th, 2004, 09:56 PM
Flar told me about this earlier today, and I am overjoyed! I'm praying with all I've got that she gets many more years! She deserves them with what she's been through.

This must be so hard for her family. They were preparing themselves for her to go and then were given hope. If anything goes wrong, it would be like losing her twice. I'll keep them all in my prayers.

violet rain
July 20th, 2004, 10:06 PM
I'm sending some quick healing energy for her, many blessings on a quick and great recovery. :)

OriginalWacky
July 21st, 2004, 12:06 PM
Long wait ends as woman gets new lungs
Yay!!!

I'll be certain to include, Ashley, her family, her friends, and the donor's family and friends in mind during ritual.

I've made my wishes expressly clear, that I want to be a donor when I die, if at all possible. It's not enough to check the little box, you need to let your family know as well. Since it's ultimately their decision, if they know that's what you want, it will make the decision easier for them.

DragonsChest
July 21st, 2004, 12:21 PM
I've made my wishes expressly clear, that I want to be a donor when I die, if at all possible. It's not enough to check the little box, you need to let your family know as well. Since it's ultimately their decision, if they know that's what you want, it will make the decision easier for them.


Very true, let your friends and family know your wishes while you can. I wouldn't mind being donated to a medical facility after all the good organs are donated - after all, that husk that's left over isn't ME.

Semele
July 21st, 2004, 12:26 PM
Tammy, my coworker just called and said she tlaked to Ashley on the phone. She is opff the vent and on a little O2, has four checst tubes and a pain button..life is good! She is so happy and breathing easy!

Imagine how it will be when they remove the chest tubes! Thanks and keep it coming!

Hope
July 21st, 2004, 12:29 PM
claps


most excellent may it continue to get easier and easier :)

love
hope

Flar's Freyja
July 22nd, 2004, 10:12 PM
Tammy, my coworker just called and said she tlaked to Ashley on the phone. She is opff the vent and on a little O2, has four checst tubes and a pain button..life is good! She is so happy and breathing easy!

Imagine how it will be when they remove the chest tubes! Thanks and keep it coming!

It's still coming from here!

Now, if I can have a little word with you about that *ahem* hospital of yours.........

Semele
July 24th, 2004, 08:47 AM
Apparently she is doing well and liking the hospital beds there so much better then here! (My work not being so popular these days in the CF community...they keep getting stuck on other floors because we have actual little people.)

Anyway she is starving and eating and laughing it up! Also I hear she is pink, but I will have to wait on that one until I see her myself next week. I have never met a pink Ashley and I am so looking forward to it!

Flar's Freyja
July 24th, 2004, 04:16 PM
Apparently she is doing well and liking the hospital beds there so much better then here! (My work not being so popular these days in the CF community...they keep getting stuck on other floors because we have actual little people.)

Anyway she is starving and eating and laughing it up! Also I hear she is pink, but I will have to wait on that one until I see her myself next week. I have never met a pink Ashley and I am so looking forward to it!

:hugz: I was just teasing! You know we always feel better when you're there, though!

Something I've noticed about CF and COPD patients is that although they are not exactly "pink," their tone seems to have a clear, almost ethereal quality. I don't know how else to explain it? They look a little healthier than most of us in a wierd way.

I was so happy to hear how well she is doing!

ApollaJade
August 2nd, 2004, 02:36 PM
I was just reading the thread... I'm glad she's okay!

DonovanJoseph
August 3rd, 2004, 02:40 AM
aww...so glad shes doing alright! energy sent! :hugz:

Semele
August 14th, 2004, 09:08 AM
Ash is home!

Gebo
August 14th, 2004, 10:49 AM
YIPPEE!!!!! Ashley is home !! Woohoo!!!

HorseCrow
August 14th, 2004, 01:37 PM
(((Energy sent)))

Semele
January 4th, 2005, 05:54 PM
We had dinner with Ashley the other night. She is doing fantastic. She only has a few more days of rehab and she is already enrolled in two college credits this year at OSU-Tulsa. Next semester she will go back to Stillwater and finish her degree! Yay!

Thanks for all your prayers and support.

Semele
May 9th, 2005, 12:19 PM
Ashley is in the hospital and could use prayers and energy if you have them to spare. Thanks in advance.

Aleannah
May 9th, 2005, 12:36 PM
energy sent :hugz:

~Elise~
May 9th, 2005, 03:09 PM
energy sent!

DragonsChest
May 9th, 2005, 04:00 PM
Oh, dear! Energy and hope sent.

Semele
May 11th, 2005, 11:59 AM
She has just been intubated. Keep the energy and prayers coming for her and family. I love you guys ..thank you.

melantha rose
May 12th, 2005, 10:05 AM
Oh, energy sent. And prayers. I hope she will be alright!! I have only seen this thread today, I have never seen this woman in my life, but I sit here and cry for her. Today is my birthday, but it is so hard to feel happy when there are so many people out there who may never see their's. :( A candle is being lit for her, as well.

Semele
May 24th, 2005, 08:02 PM
Sorry for the late update, but the news is good. Ashley is off the vent and walking around causing trouble already. Planned a dinner date for all of us in a week. thank you all for your prayers and energy.